Skip Navigation

 

HOME | ABOUT US | CONTACT US

(800) 580-7801 (toll free)
(888) 488-8633 (TDD toll free)

FacebookYouTubeemailrss feed

 FDDC Logo

Health Care/Prevention Task Force 2012-2016

Historical information through September 30, 2016

Health Care/Prevention

Meetings

Task Force Members

Executive Summaries

Meeting Materials

Meeting Minutes

 

Health Care and Prevention Task Force
 
The focus of the Health Care and Prevention Task Force is advocacy, capacity building, and systemic change activities designed to increase access and capacity to a more coordinated health care system for individuals with developmental disabilities. Guided by the five year state plan, the task force’s goals and objectives include:
 
Health Care and Prevention Task Force Projects
 
·     Oral Health Care Training for Caregivers   - See also http://www.fddc.org/about/oral-health-care-training-for-caregivers
 
This initiative will provide training to caregivers of individuals with developmental disabilities on how to perform daily oral hygiene in a home setting using materials previously developed for the Council. Our provider for this initiative is the University of Miami Mailman Center for Child Development.  
 The specific outcomes of this project will include the following:
1. The oral care training program will be utilized in trainings and technical assistance throughout Florida.
2. Caregivers will apply strategies identified in the resource to provide oral care for individuals with developmental disabilities.
 
·     Easing Your Stress – Information for Caregivers of Individuals with Developmental Disabilities
 
The Florida Developmental Disabilities Council has a new publication about stress and stress management for caregivers of individuals with developmental disabilities. The publication, titled Easing Your Stress – Information for Caregivers of Individuals with Developmental Disabilities, is an informative, user-friendly, evidence based booklet written for caregivers of individuals with developmental disabilities. In its 20 pages, caregivers learn:
·         How the mind-body connect affects their response to stress,
·         How stress affects children,
·         How other caregivers have learned to ease their stress,
·         What resources are available, and
·         How to identify approaches that will work for them.
 
English and Spanish versions of the publication can be downloaded from the FDDC website at http://www.fddc.org/publications (under Health Care) or hard copies may be ordered online for FREE at http://www.fddc.org/publications/order-online.
Easing Your Stress - Spanish
 
Stress and What You Can Do About It
 
Stress and What You Can Do About It is a book that takes individuals with developmental disabilities through a colorful, graphically attractive and easy-to-read lesson in the basics of stress and stress management.  Among the highlights of the book are “case study” type stories that help illustrate the concepts presented, a basic “stress test” that helps readers identify if they are at-risk for stress, a stress rating system to help the reader gauge their stress levels in certain situations and a tear-out card that can be used as a visual reminder of the key concepts presented in the book. 
 
English and Spanish versions of the publication can be downloaded from the FDDC website at http://www.fddc.org/publications (under Health Care) or hard copies may be ordered online for FREE at http://www.fddc.org/publications/order-online.
 
 
·     My Health Care 
 
My Health Care is a training program intended to educate individuals with developmental disabilities on how to communicate with health care professionals and to identify and advocate for their own health care needs. The goal of this initiative is to support, through skill building and the use of adaptive tools, individuals with developmental disabilities as primary participants in all matters related to their health care and healthy living. In this training program, adults with developmental disabilities have a role as primary participants in learning and in mentoring peers about healthy living and managing acute or chronic illness. Each instructor training team includes one person with a developmental disability who is a full member of the training team and shares responsibility for facilitating and delivering content throughout the training session. Using the GLADD model (Give Listen Ask Decide Do) developed at University of Florida’s Institute for Child Health Policy (UF/ICHP), the curriculum encompasses the following components in an interactive, multi-media format: 
 
·         Being prepared with questions and issues to discuss at office visits
·         Providing a health summary to the physician
·         Being assertive when communicating
·         Paying attention to body language
·         Using rating scales and visual aids to communicate health issues
·         Learning negotiating skills; providing feedback to the physician  
·         Utilizing caregivers to assist with communication
·         Recording communication with physician to enhance information recall and comprehension
·         Utilizing technology to improve health care communication and self-management
 

 

The curriculum employs multiple teaching methods to accommodate diverse learner needs, incorporating modeling, games, and role play activities throughout the course. It includes PowerPoint slides, videos for learners, web-based resources and print materials.  The Instructor’s Guide provides a detailed course outline and resources needed for implementation. It also offers guidance in integrating Florida Access Points for English Language Arts and Health Education in teaching and learning, and provides formative assessment rubrics to aid learning among students at every performance level. Technology requirements include internet access and audio-video equipment for classroom presentations (i.e., computer. LCD projector, screen).
All program materials, including instructor training videos, can be viewed and downloaded at:
A limited supply of printed instructor and learner materials are available to interested persons or organizations. The PowerPoint programs are also available on DVDs and include  all of the embedded video clips. To request any of these materials, please contact Holly Hohmeister at FDDC, (800) 580-7801 or email hollyh@fddc.org

 

 

Our provider for My Health Care is the University of South Florida
 
The specific outcomes of this project will include the following:
1. The “My Health Care” training will be implemented in two areas of Florida.
2. Individuals with Developmental Disabilities will demonstrate an increase in knowledge in advocating for their health care needs.

3. Individuals with developmental disabilities report using the knowledge and skills gained from the trainings in advocating for their health care needs.  
                                             
·     Community Wellness Needs Assessment
 
This initiative conducted a needs assessment and interest survey to determine the needs of individuals with developmental disabilities as it relates to pursuing health and wellness activities in their communities. The Council plans to use the results of the assessment to plan health and wellness programs in the communities throughout Florida. This will impact individuals with developmental disabilities by creating programs tailored for their specific area of the state that will improve access to inclusive community health and wellness activities which will lead to the reduction of obesity and other secondary health conditions (like diabetes and high blood pressure). The full report with the results of the assessment can be accessed here -
 
·     Physician Training Program
 
This initiative developed a continuing education program for physicians about how to provide effective care to adults with developmental disabilities. A 12 hour webinar series was conducted July – October 2012 covering topics such as best practices in the care of adults with developmental disabilities, strategies for addressing the psychological and support needs of adults with special health care needs, practical strategies for providing care in medical offices and facilities, and effective billing and reimbursement practices. The webinar series can be accessed at http://aadmd.org/page/pedd-webinar-series.
 
This initiative also promoted the continuing education webinar series to practicing physicians and integrated the curriculum topics into physician residency programs via the FRIEND (Family Medicine Residency Inclusion and Engagement of People with Neurodevelopmental Disabilities) project. Please visit http://aadmd.org/page/friend-residency-pilot-project for more information.
 
Our provider is the American Academy of Developmental Medicine and Dentistry.
 
The specific outcomes of this project will include the following:
1. The training program will be administered to practicing physicians.
2. The training program will be integrated into at least 1 postgraduate medical curriculum.
3. Increased knowledge of training participants in the best care for adults with developmental disabilities.  
 
Nurse Practitioner Training Program
This project will develop a training program for nurse practitioners in Florida about how to provide effective and appropriate care to adults with developmental disabilities. This training will be approved for continuing nursing education (CEU) credit and offered at no cost to nurse practitioners. The training will be available spring 2015. Our provider is the American Academy of Developmental Medicine and Dentistry. 
The specific outcomes of this project include the following:
1. A training program will be developed to train Advanced Registered Nurse Practitioners on best care practices in the care of adults with developmental disabilities.
2. Increased knowledge of training participants in the best practices for medical care of adults with developmental disabilities. 
3. A curriculum document will be developed that describes the learning goals and objectives of the NPEDD project.
 
Nurse Practitioner Education in Developmental Disabilities
The AADMD is proud to offer a free, 7.0 credit-hour webinar series based on the first internationally vetted curriculum in Developmental Medicine created in the United States. This series is designed to enhance the practice skill of nurse practitioners and nurse practitioner students who would like to provide better care to their adult patients with developmental disabilities.
The program is approved for 7.0 contact hour(s) of continuing education by the American Association of Nurse Practitioners. Program ID 1503144. This program was planned in accordance with AANP CE Standards and Policies and AANP Commercial Support Standards.
This program is available for AANP continuing education credit only. If you are not a nurse practitioner please check with your specific professional or licensing board to see if this program will qualify for your educational requirements. You must watch and complete all webinars in this series in order to obtain credit. An additional module on communication has been added but is not given for AANP credit.
The webinar schedule is as follows: (click on a title below to register for this program)
Module
Title
 
1
2
3
4
5
6
7
8
Communicating Effectively with Adults who have Developmental Disabilities
(viewing is optional and not required for credit)
After watching the series you will need to pass a test to receive your credit (70% or more is required to pass and the questions cover required modules 1 - 7).
 
For more information about these initiatives, please contact Holly Hohmeister, Health Care and Prevention Task Force Program Manager via email at hollyh@fddc.org or phone (850) 488-4180.
 

 

 

Copyright 2017 Florida Developmental Disabilities Council, Inc. | Powered and Designed by 3W Studios