Council Research Reports
The Council funds, conducts and/or participates in research studies where information and data collected can be used to impact systems change and best practices.
The Florida Developmental Disabilities Council is the granting agent for research-based, innovative, sustainable solutions that address the critical needs and priorities of individuals with intellectual and developmental disabilities and their families. For nearly 50 years, the Council has leveraged nearly 4 million federally appropriated dollars annually through the Developmental Disabilities Act.
Aging Generations' Expectations in Developmental Disabilities
The purpose of the aging caregivers’ initiative, Aging Generations’ Expectations in Developmental Disability (AGEDD), is to address the lack of appropriate supports and services for older family caregivers and their aging adults with intellectual and/or developmental disabilities (I/DD). This report will provide a background of the aging and developmental disabilities systems in Florida. Since both systems have different funding streams and infrastructures, the task will be to find components that intersect in a positive way to support a new generation of older persons with I/DD and their aging caregivers. These Florida residents require the same sorts of home-and community-based, long-term supports and services that have been the hallmark of the aging network for several years.
Competencies for Case Management Professionals Supporting People with Intellectual and Developmental Disabilities: An Environmental Scan
Mathematica, Inc., under contract with the Florida Developmental Disabilities Council, Inc., conducted an environmental scan of articles from peer reviewed journals, government reports, and websites on the topic of case management and other support coordination models within the I/DD field as well as those for other relevant populations. This report served as the basis for the development of a suite of tools to assess case management that can be used by individuals with I/DD, family members and caregivers, case managers, and those supervising case managers.
Dually Diagnosed Research Study
The National Association for the Dually Diagnosed conducted a research study to identify the needs of individuals with intellectual and developmental disabilities with co-occurring mental health conditions (i.e., dual diagnosis). The research study included an environmental scan, a literature review of research on mental illness in persons with I/DD, and mixed-methods procedures to gather information about people with I/DD, their families, and service systems that interact with them. The research study resulted in a state strategic plan to provide direction for services and supports to meet the needs of this complex population.
View the Dual Diagnosis Research Study
View the Dual Diagnosis Strategic Plan
Measuring Service Quality: An Environmental Scan
Mathematica, Inc., under contract with the Florida Developmental Disabilities Council, Inc., conducted a review of measures currently being used to assess services and programs being provided to individuals with I/DD. These included national, Florida-specific, and local measures that were relevant to a variety of service types. Specific measures for supported employment, residential, and day training programs were investigated. The measures found are described in this environmental scan.
Researching Provider Solutions for People with Intellectual and Developmental Disabilities: An Environmental Scan
Mathematica, Inc., under contract with the Florida Developmental Disabilities Council, Inc., conducted a review of articles in peer reviewed journals, government reports, and relevant websites to locate information about the shortage of people providing support to individuals with I/DD and how those shortages are being addressed. This summary includes information about the identified challenges and solutions currently being implemented.
State of the State
The State of the States in Intellectual and Developmental Disabilities Project is a national longitudinal comparative study of financial and programmatic trends in spending on supports and services for people with IDD in the United States. It is a Longitudinal Data Project of National Significance and receives funding from the Administration on Community Living.
State of Florida Comprehensive Review and Analysis 2021
WellFlorida Council, Inc. was engaged in an 18-month study on behalf of the Council to conduct a comprehensive review and analysis of funding, services and resources for persons with intellectual and developmental disabilities and their families. The purpose was to assist the Council in building its 5-year state plan (2022-2026) required under the Developmental and Disabilities Bill of Rights Act of 2000 through the Administration for Community Living. The full analysis of primary and secondary data can be reviewed here.
State of Florida Technical Appendix Data 2021
Secondary data collected in the development of the 2021 Comprehensive Review and Analysis is reflected in this report.